As part of its public policy efforts, the Special Needs Alliance spent much of 2021 advocating to make the Social Security system fair for children with disabilities who are entitled Social Security benefits based on a parent’s work record. These are known as Childhood Disability Benefits (CDB, formerly known as Disabled Adult Child or “DAC” benefits). Adult children with disabilities that arose before the age of twenty-two years may be eligible for CDB benefits and collect Social Security Disability Insurance (SSDI) on a parent’s work record when the parent begins to collect Social Security Retirement or Disability Insurance benefits, or when the parent passes away. In addition to SSDI, the child will be eligible for Medicare benefits after receiving SSDI for 24 months.

We will continue to share our progress with our existing advocacy efforts, as well as any new efforts, on the Special Needs Alliance Public Policy Page on our website found here. We invite you to visit our site for updates on these important initiatives and look forward to another exciting and productive year!

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